Henry has been to the doctor three times in the last two weeks. The first was an appointment with a regular pediatrician just to get established and have a check-up. His doctor said he's really healthy and doing very well developmentally. He is in the 85th percentile for his height and the 80th percentile for weight! Later that week we went to an ENT doctor for his ear atresia. That doctor examined him and then admitted that he wasn't the right doctor for Henry. He referred us to another ENT who specializes in ear disorders. We saw that doctor yesterday. He had a lot of interesting information for us. First of all, Henry will need to undergo an ABR hearing test (auditory brainstem response) to find out what level of hearing he has. He had this done as a newborn in Korea, and it showed hearing loss in both ears, however we have been told that the results can change over time. We do know that Henry can hear on some level since he is talking and repeats words/sounds that we make. The same day they perform the ABR, they will do a CT scan of his head to check out the formation of his inner ear on the right side. It will help determine if he is a candidate for surgery later on to open up his ear canal. He will have to be sedated for these two procedures, which is why they will do them on the same day. Also, the doctor talked to us about Henry needing to wear a hearing aid on the ear that is affected by the atresia. The doctor explained that it will help Henry's language development immensely. He placed a hearing aid on Henry just to try out. It was amazing to watch Henry's face as he was hearing out of both ears for the first time! Down the road, Henry will also have plastic surgery on this ear to make it look more like it should. I feel sad that my little man will have to go through so much, but I know that he is blessed to be with a family that can provide him with the treatments he needs.
Here are some new things about Henry:
*He calls me "Mom." We taught him to say "mama" but he decided that I'm Mom instead! It's the cutest thing ever to hear him say it. When he's sad, he wails "mooooooom".
*He learned how to say "more" in sign language. He not only signs it when he's hungry, but he says "mo". Or, if you are feeding him something really yummy like chocolate pie in a restaurant, then he'll shout "MO" at the top of his lungs over and over.
*Henry is learning animal sounds. He roars like a tiger, moos like a cow, and we're working on barking like a dog and hissing like a snake.
*He will kiss you on the lips if you ask for a kiss.
*He's really ticklish and will let out a deep belly laugh when Daddy tickles him. We are trying to capture it on video.
*His language is really blossoming all of the sudden. For the first time in 2 months, I can say now that he's understanding some things we say. Until now, he was just repeating words, but lately he is developing understanding of what those words are. For example, I asked yesterday if he wanted his bottle and he toddled to the kitchen and stood by the fridge waiting for one!
Looking at a magazine while waiting to see the doctor.
He loves bath time!
We've been working on teaching him "nice touches" with the doggies.
2 comments:
Welcome back to the blogging world! The story about the hearing aid put a smile on my face! What an awesome little boy you guys have! I hope he adjusts to all the changes soon and everyone gets some sleep...it sounds like he is progressing so well! :-)
hey, I sent you a PM today. Glad to have you back in the blogging world. I have been out for a while too so I totally understand. Henry s doing so wonderful. You and James are just so blessed.
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